Sickle Cell Awareness
Promoting the agenda for Sickle Cell Awareness on an Individual, Local, National and International level
THE
FIRST
Port of call is to 'BE SCREENED'
(tested for the Sickle Cell Gene),
It is of fundamental importance to 'Be Sickle Aware'. Knowing your Sickle Cell Status can save lives and trauma.
If you can, give blood.
Many patients with sickle cell disease rely on blood transfusions to manage the disease.
Chronic transfusion patients receive blood on a monthly basis in order to stay healthy. This is why donating blood is so important.
THE
SECOND
To discuss your
Awareness Programme needs
THE
THIRD
​​Information is the key foundation for improvement.
via the use of Webinars, Seminars, Private Consultations & Public Meetings, we have been serving the community spreading the word of Sickle Cell Awareness for 10 years now!
Get your institution, establishment, firm, agency... team, staff and or students booked in for a sickle cell awareness programme, presentation, lecture or workshop today!
We are particularly keen to work with more Medical Institutions;
GP Surgeries, Hospitals & Medical Teams.
Education Establishments; Schools, Colleges & Universities & Places of Worship
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Our Public Awareness Programmes are delivered by a team of Sickle Cell Aware Certified Volunteers, predominately made up of individuals closely connected and affected by Sickle Cell Disease such as Warriors themselves (their carers, family & friends), who truly understand the issues and challenges concerned; as well as NHS Staff, Social Care Workers and Health Equality Activists who have a passion for the cause and see the importance of wide spread Sickle Cell Awareness.
​The Sickle Cell Warrior's voice being heard is at the heart of our Awareness Programs, designed to highlight the prevalence of Sickle Cell Disease, the cause, symptoms, treatments, cure and complications. To give insight to the personal daily living, mobility and psychological strives faced by those living with Sickle Cell whilst acknowledging the historical impact of systemic race disparities, professional attitudes and ignorance on service outcomes and subsequent health inequalities.
Our programmes offer medical professionals and the wider community an opportunity to embrace the movement toward Health Equality and the overall improved care for Sickle Cell Patients through an experience of understanding and inspired change.​​
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In House
The George Marsh Centre has been the home for Sickle Cell education and awareness since its inception. SC CAUSE upholds this legacy by hosting Monthly Awareness Presentations for NHS Staff, Teachers & Social Care Worker.
In Community
SC.CAUSE Community presence and engagement is our area of excellence. We enjoy connecting with the community, attending nationwide initiatives, events and engagements. Hosting our awareness table, sharing information and delivering presentations.
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In Education & Medical Establishments
Establishing stronger connections with Education and Medical Establishments to implement on-going systemic Sickle Cell Awareness programmes is our current area of focus.
In Places of Faith
The level of support SC.CAUSE receives from of faith groups is next to none.
Sickle cell disease is a genetic condition that is present at birth. It is inherited when a child receives two sickle cell genes – one from EACH parent.
Sickle cell disease can occur in any race or ethnic group. This genetic condition has long been associated with people of African descent, however it can be found in many races and ethnic groups, including Middle Eastern, Latino, Asian, Mediterranean decent, and even Caucasian.
There are different types of sickle cell disease which vary in severity. Hemoglobin SS (the most type) and sickle beta thalassemia zero are most severe followed by hemoglobin SC and sickle beta thalassemia plus.
Twenty-five years ago, a person with sickle cell disease was not expected to live to adulthood, and the average life span was 21 years. Today, the outlook is much more optimistic, and many people are living beyond age 50.