The Awareness and Advocacy Departments of this group is posthumously dedicated with deep affection to the late:
Dr. Neville Roy Clare MA. PhD
8th May 1946 - 20th July 2015
The Sickle Cell Warrior who founded
'The Organisation for Sickle Cell Anaemia Research
This group will hold fast our pledge to remember and honour Dr Neville Clare as is his due.
Each and every year at the Annual General Meeting of Sickle Cell Cause Neville's wife and daughter passionately awards members and supporters of Sickle Cell Cause and members of our wider community with an OSCAR trophy to show appreciation for the highly exceptional support they afforded the Sickle Cell cause in memory of our sleeping warrior hero.
'In his name we honour our supporters to show appreciation of how Dr Neville Clare honoured us'
Dr Neville Roy Clare was born in Allman Town Kingston Jamaica to father Steadman Clare
a chef & mother Mavis a seamstress on the 8th May 1946.
His community was working class with a high sense of pride and his childhood was a happy one.
As a child, Neville had a passion for flying kites and playing cricket.
His early years saw his father away a lot working as a chef on the merchant ships and he missed him terribly at these times especially as it was his father that would take him to the everlasting stream of doctors who could never find out what was wrong with him; however; when he was seven years old there were happier times when his father found a job as a chef in a hotel in Montego Bay meaning he no longer had to go away for long periods.
At age 11 on September 22nd 1957 Neville came to England; His first address being in Palace Gates Road, Wood Green, North London.
Neville suffered terribly with the cold weather and attended Bounds Green School where he experienced some harrowing experiences especially during the compulsory Physical Education classes.
However; he was very academic and studied hard throughout his school years.
At 18years old he left school to attend Hackney Technical College where he obtained his O levels he then took up an apprenticeship to do technical drawing whist attending Tottenham Technical college in the evenings.
Throughout these years, Neville had to also live with constant pain, he knew he had a dangerous condition but nobody seemed to know what exactly was wrong with him.
So, when he was finally diagnosed with a name of his illness he then set about with research to find out what it was exactly and how it could be treated.
This ended up being his life’s work and in 1975 he set up the ‘Organisation for Sickle Cell Anaemia Research’ otherwise and internationally known as OSCAR.
In today’s times, we at the Sickle Cell Care, Unity, Support with Empathy Group will never forget this quiet gentleman who made it his life’s journey to look out and advocate for ‘us’, his peers who also suffer with the daily pain from living with Sickle Cell Anaemia.
We dedicate to continue to honour the memory of our sleeping Sickle Cell Warrior who was the inspiration behind this group’s very beginnings and will continue to annually remind the community and acknowledge that he, Dr Neville Roy Clare, is the sole reason why there is a blueprint for addressing the needs within Sickle Cell Support groups nationally and internationally.