We Advocate For:
• Correct Housing Conditions
• Support with General Practitioners
• Promotion of the agenda for Sickle Cell Awareness on an
Individual, Local, National and International level.
• Supporting letters and/or personally accompanied/ representation to governmental service providers, etc.
Speaking Out !!
Over the years, SC Cause volunteers and the sickle cell affected has witnessed many changes with government legislations, policies & procedures that has proven to be detrimental, causing hardship, discomfort and life-threatening circumstances.
Changes in law has brought about reduced support within the UK’s housing, social & welfare departments, in many cases policies that the sickle cell community worked hard to create and have enforced are now being ignored or/and cease to exist.
This groups Advocacy Team are working hard to have these laws reinstated and adhered to. If the sickle cell community remain silent, we will not be taken seriously as a collective of human beings living with a life threatening, painful and debilitating condition.
WE MUST SPEAK OUT and we welcome SUPPORT from our community with these issues.
SPEAKING OUT IN PARLIAMENT IS PARAMOUNT
Save Our Sickle Cell Centre!!
The home of SC Cause is 'The George Marsh Centre' based in the grounds of St Anns Hospital, St Anns Road, Tottenham, N15 3TH.
Since 1989 there has been an avenue for Sickle Cell support at this address, the centre was aptly named in memory of Dr George Marsh, Consultant Haematologist who passionately served the sickle cell and thalassaemia community for many years, and sadly just before his demise began the process for the building of this centre to ensure their was a home for the Sickle Cell community.
Sadly he didn't live to see the centre's building complete, however, it was named in his honour,
Unfortunately we have been informed that the centre is to be taken away from the sickle cell community.
Our Advocacy Department will fight this intention and ask our community for support.
Please sign and share our PETITION
We need 100,000 signatures of support for our case to be considered in Parliament
We will keep you informed of our progress.
The ‘Sickle Cell UK Advocacy Panel’
Sharing information with other Sickle Cell Support Groups is very important; it enables us all to communicate effectively to improve governmental services and assist each other countrywide by knowing & addressing the strengths & weaknesses we all have collectively.
SC Cause has taken the initiative to create a panel from personnel members of support groups around the country and invite coordinators from these groups to choose a member from your group to be your representative member of the new ‘Sickle Cell UK Advocacy Panel’, ‘SCAP’.
The purpose of this panel is to give as many persons affected by Sickle Cell Anaemia a professional and united voice when dealing with issues that concern all; each panel representative will bring
forth their groups collective issues, opinions and possible solutions
to the Advocacy Panel thus enabling unified decision making for all concerned.
Housing Conditions, Social Benefits, GP Support, Hospital Admissions, Medical Treatments and Empathy are some of the pressing issues being discussed at present.
For changes to be made and set as definite protocol with guidelines which are monitored with purpose within these environments we the active voice of the Sickle Cell community are much more effective when we came together to present our issues in the correct way in numbers, thus the need for us to collate together.
Working with Other Sickle Cell Organisations
In summer 2016, SC Cause met with Solace SG.
The committee and members of SC Cause strongly believe it to be of fundamental importance to liaise and work together with other Sickle Cell Support Groups. Especially those that we share similar passions and are taking action to create, advocate & legislate advancements for The Sickle Cause.
Below are some videos of the event.
We look forward to joining SOLACE SG on more health and social events in the future, and encourage participation to their programs like the Yoga Sessions they set up for Sickle Cell Warriors in 2015!